Tuesday, December 29, 2009

There is Always Always ALWAYS a Story Worse than Yours

There is never a tomorrow, there is only today. There are 24 hours in a day. There are 60 minutes in an hour, making 1,440 minutes in a day. There are 60 seconds in a minute, making 86,400 seconds in a day. That's not that much. What do you want to spend your life--day doing?

Life is about giving because, as I have said before, there is always a story worse than yours. Do you have a good life? I know for a fact that you do, because if you are reading this, it means you have enough money to have a computer. Millions of people aren't as fortunate as you.
Yesterday I was at my monthly clinic appointment to make sure my kidney was doing okay, and I was outside in the hallway, reading about other kids' stories. There was a poster about the Make a Wish Foundation, and a girl who had some type of cancer had wished for a computer, while another child had wished to go to Disneyworld. These things to us are memories. "Oh, remember last Summer at Disneyworld!" and "My stupid computer! I have to get a new one..." We shouldn't take these things for granted.

I also saw many fliers on a skin disease called EB (Epidermolysis Bullosa) which is a very painful skin disease. Up to 75% of a child's body can be covered with painful burn-like wounds, except they will not heal. It is a very rare genetic disease. When I was on dialysis, I had a bandage over the H.D. catheter. Every other time I went to dialysis, they had to change the bandage to lower the risk of infection. That was the most unbearable pain I had ever had in my whole life. With the EB disease, bandages over wounds most be changed daily, and the child must bathe daily as well. Their wounds hurt so bad, that even walking can bring so much pain. Children can't walk, ride a bike, or even simply wrestle with their fluffy dog. There is a kid, named Shane Digiovanna. I don't know him, but I was looking up the disease and I saw his story online. He has it off pretty bad. See the URL for more information below.

So why did I tell you about this? This is only one of the billions of weird diseases that you or someone you know could have, but doesn't. Most of the world goes about their daily day, not liking their life because of the dumbest things. Remember that there is always a worse story than yours.




Copy and paste this to see the website.
http://www.cincinnatichildrens.org/about/patient/epidermolysis-bullosa-shane.htm