Inspiration

One of my favorite things is not a material thing. One of my favorite things is inspiration. Inspiration comes from anything you want it to come from. Mostly for me, it is a song or if I spend a day out in nature. It's amazing how a song, a place, or even a certain smell can make you feel. If you listened to a song while you were somewhere that you either loved or hated, it'll atomatically make you feel like you're there. Even doing things. When I was first in the hospital this summer, getting my H.D. catheter in, I played a lot of Webkinz games. Now when ever I play them I feel as if I am in the hospital room. This doesn't bring good--or bad feelings (its very hard to explain)



Whenever I am in nature, I feel the need to draw it. It's my way of expressing my feelings. I want my paintings and sketches to reach out to people and have them feel the inspiration that I had while drawing. I try to draw things that have to do with my experiences, to show people what I'm like.

You'd think a person like me would be okay with blood and stuff like that--NO WAY! I am the most anti-blood person you could meet. I would never never never be a surgeon, or even a doctor, at that. Anything having to do with blood creeps me out because I know how needles and pokes feel. You mention one thing about any sort of port, tube, needle, or catheter and I cringe. Even just now, I was looking up any sort of picture I could put on this post, and I typed in "dialysis" on Google, and I just can't bear it!

A lot has happened in my life, in just a short period of time. Time moves so fast, and good, bad, horrible, terrible, exciting, thrilling, and devastating things can and will happen that will change your life forever. What has happened to you? For me, the risk of losing my freedom is always there to haunt me if I don't take care of myself. If I don't take my medicine, drink the correct amount of water, and follow up on anything new or different about the way I feel to my doctors, I could loose my kidney, and lose my freedom because I would have to go back on dialysis. Dialysis--you'd never, ever know what that's like until you've had it. I am actually proud to say I lived through a month of dialysis, and successfully got off of it. What has happened to you? What are you proud of? Think about it.

(Picture taken by my sis, me on dialysis)

There is Always Always ALWAYS a Story Worse than Yours

There is never a tomorrow, there is only today. There are 24 hours in a day. There are 60 minutes in an hour, making 1,440 minutes in a day. There are 60 seconds in a minute, making 86,400 seconds in a day. That's not that much. What do you want to spend your life--day doing?

Life is about giving because, as I have said before, there is always a story worse than yours. Do you have a good life? I know for a fact that you do, because if you are reading this, it means you have enough money to have a computer. Millions of people aren't as fortunate as you.
Yesterday I was at my monthly clinic appointment to make sure my kidney was doing okay, and I was outside in the hallway, reading about other kids' stories. There was a poster about the Make a Wish Foundation, and a girl who had some type of cancer had wished for a computer, while another child had wished to go to Disneyworld. These things to us are memories. "Oh, remember last Summer at Disneyworld!" and "My stupid computer! I have to get a new one..." We shouldn't take these things for granted.

I also saw many fliers on a skin disease called EB (Epidermolysis Bullosa) which is a very painful skin disease. Up to 75% of a child's body can be covered with painful burn-like wounds, except they will not heal. It is a very rare genetic disease. When I was on dialysis, I had a bandage over the H.D. catheter. Every other time I went to dialysis, they had to change the bandage to lower the risk of infection. That was the most unbearable pain I had ever had in my whole life. With the EB disease, bandages over wounds most be changed daily, and the child must bathe daily as well. Their wounds hurt so bad, that even walking can bring so much pain. Children can't walk, ride a bike, or even simply wrestle with their fluffy dog. There is a kid, named Shane Digiovanna. I don't know him, but I was looking up the disease and I saw his story online. He has it off pretty bad. See the URL for more information below.

So why did I tell you about this? This is only one of the billions of weird diseases that you or someone you know could have, but doesn't. Most of the world goes about their daily day, not liking their life because of the dumbest things. Remember that there is always a worse story than yours.




Copy and paste this to see the website.
http://www.cincinnatichildrens.org/about/patient/epidermolysis-bullosa-shane.htm